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Hire Clarinda C.

India

USD 120 /hr

First EUPATI Patient Expert in India ┃ Patient Engagement Consultant ┃ Rare Disease Advocate ┃ PPI Contributor

Profile Summary

*Consult me on patient-aligned clinical trials, patient-reported/patient-experience outcome measures, patient journey mapping, patient education, aligning healthcare processes with patient needs, rare disease research, patient authorship, content strategy, community outreach, and stakeholder engagement* I’m the first and only India-based EUPATI-Certified Patient Expert, an India Ambassador for The Sumaira Foundation, and a member of the International Society for Patient Engagement Professionals (ISPEP). Through my podcast "Not Just Patients," I aim to break barriers to meaningful patient involvement in healthcare. My approach to patient engagement draws on 18+ years of global experience working with patients, researchers, scholarly publishers, pharma, and public health groups, during which time I have taken several international projects from 0 to 1 and scaled them up with exceptional results. Through impassioned story-telling, empathetic problem solving, and strong leadership, I inspire people to dream big and then turn ideas and discussion into action and results. My training as a Stanford-certified design thinker and my lived experience as a patient with a rare disease and multiple chronic conditions allow me to think patient first and bring empathy and deep insights into healthcare conversations. My consulting clients include non-profit organizations, pharmaceutical companies, academic research groups, CROs, health-tech start-ups, and the World Health Organization. If anything you see here interests you, send me a message. Key industry contributions: - Patient contributor on PRO-EDI: improving how equity, diversity and inclusion are handled in evidence synthesis (https://www.trialforge.org/trial-diversity/pro-edi/) - Patient contributor for PRECIS-3 guidelines for clinical trials (currently in development) - Co-host at the 2nd International Patient Summit, New Delhi, March 2025 Recent publication: Cerejo, C. (2024). The untold emotional toll of navigating the health system: the journey of patients in/from India, living with serious and/or chronic conditions. Current Medical Research and Opinion, 40(9), 1605–1613. https://doi.org/10.1080/03007995.2024.2383732 Recent Interviews: - Chronic Pain Club Talk Show (https://www.youtube.com/watch?v=hcO8Ep6_crM) - Rare Revolution Magazine (https://editions.rarerevolutionmagazine.com/html5/reader/production/default.aspx?pubname=&edid=xxxxxxxx-cf4c-4bad-b1c0-41cc985a8f41&pnum=67)

Subject Matter Expertise

• ★ Clinical Trial Design
• ★ Patient Education Materials
• ☆ Clinical Trials
• ☆ Patient Recruitment

Services

• Consulting

Consulting Business Strategy Consulting, Healthcare Consulting

Work Experience

Podcaster (Co-Host, Producer)

Not Just Patients

April 2024 - Present

EUPATI Fellow and Patient Engagement Consultant

Independent Consultancy

July 2022 - Present

Consultant, Outreach and Engagement

World Health Organization

July 2022 - September 2024

Education

Masters in Biotechnology

University of Mumbai

July 2004 - May 2006

Certifications

• Patient Expert

  EUPATI (European Patients' Academy on Therapeutic Innovation)

  https://learning.eupati.eu/admin/tool/custompage/view.php?id=3

  August 2023 - Present

• DESIGN THINKING: FROM INSIGHTS TO VIABILITY

  Stanford University Graduate School of Business

  https://www.gsb.stanford.edu/exec-ed/programs/stanford-lead/curriculum/courses/innovation-process

  July 2022 - Present

Publications

ONLINE RESOURCE

Clarinda Cerejo (2024). The evolution of patient power . ISPEP (International Society for Patient Engagement Professionals).

Clarinda Cerejo (2024). A new era of empathy in patient interactions . Climedo.

Clarinda Cerejo The evolution of patient power . ISPEP (International Society for Patient Engagement Professionals).

JOURNAL ARTICLE

Clarinda Cerejo (2024). The untold emotional toll of navigating the health system: the journey of patients in/from India, living with serious and/or chronic conditions . Current Medical Research and Opinion.

Clarinda Cerejo, Basil D’Souza, Sneha Kulkarni(2018). Authors’ perspectives on academic publishing: initial observations from a large-scale global survey . Science Editing. 5. (1). p. 39--43. Korean Council of Science Editors

Clarinda Cerejo(2016). How Can I Make My Abstract More Effective? . Science Editor and Publisher. 1. (1-4). p. 43--45. Association of Science Editors and Publishers

Clarinda Cerejo, Jayashree Rajagopalan(2015). Tips for Journal Editors Transitioning to Open Access and the Role of Mega-Journals in the Publishing Landscape . EON. 8. (7). p. 11--13. International Society for Managing and Technical Editors ({ISMTE})

Cerejo C. My life as an editor; European Science Editing; 2014, 40(3), 81.

Clarinda Cerejo, Remya Nambiar, Priyanka Tilak(2014). Quality of author guidelines of journals in the biomedical and physical sciences . Learn. Pub. 27. (3). p. 201--209. Wiley-Blackwell

Clarinda Cerejo(2014). International journal editors and East Asian authors: two surveys . Learn. Pub. 27. (1). p. 63--75. Wiley-Blackwell

Cerejo C, Rajan N. Optimizing the output of a freelance editing model: Value added by an in-house reviewing team. Science Editor. 2012;35(1):5-9 .

MAGAZINE ARTICLE

Clarinda Cerejo (2023). An appeal for a more inclusive, representative, and accessible National Rare Disease Policy . Express HealthCare.

Clarinda Cerejo (2020). Sometimes giants need a shoulder to stand on too .

REPORT

(2020). How to foster a Supportive Research Environment: A thematic analysis of open responses from the CACTUS Mental Health Survey 2020 .

(2020). Joy and Stress Triggers: A global survey on mental health among researchers .

Cerejo C. International boundaries, publishing barriers: Empowering authors in newly industrialized and developing countries. Science Editor 2013;84(36):3 .

Cerejo C. Annual meeting of the Council of Science Editors. 2013;39(3):72 .

BOOK

(2017). Common Subject-Specific Mistakes in Research Manuscript Preparation [In Japanese].

(2016). 100 Common Mistakes in Research Manuscript Preparation: Practical Advice from an English Editing Company [in Japanese].

CONFERENCE POSTER

(2016). How well do authors understand publication ethics? A model for author education on good publication practices. IV BRISPE: Brazilian Meeting on Research Integrity, Science and Publication Ethics.

(2014). Author Education Strategies Beyond Cultural Boundaries. 12th EASE Conference, SPLIT 2014.

Khanam S, Cerejo C. Can authors’ editors help expedite peer review of the manuscripts they edit? Poster abstract available at http://www.ease.org.uk/ease-events/major-conferences/ease-ismte-joint-meeting-blankenberge-2013/easeismte-poster-titles-a-2 .